I worked a bit with a chronic pain researcher at NIH. The field has developed a lot recently, but a lot of recent learnings have not been translated into standard clinical practice. For one thing, the ends of the scale should be clearly defined - 0 should be no pain, and 10 should be the "worst pain imaginable". Pain needs to be understood as operating on a logrithmic scale, also - see the work of Andrés Gómez Emilsson: https://qri.org/blog/log-scales
Random sampling via cell phone messages, called ecological momentary assessment, can be used to more accurately understand pain temporal dynamics, and having patients draw pain diagrams can give a much more detailed understanding of pain location and type, aiding diagnosis.
Thank you for sharing, and for working on subtyping.
A lot of your experience sounds familiar to me (ME/CFS). Invisible disability, people never see the bad days, the doubting and downplaying. People get very weird around disability that doesn't fit their preconceptions. I like the term "dynamic disability".
I worked a bit with a chronic pain researcher at NIH. The field has developed a lot recently, but a lot of recent learnings have not been translated into standard clinical practice. For one thing, the ends of the scale should be clearly defined - 0 should be no pain, and 10 should be the "worst pain imaginable". Pain needs to be understood as operating on a logrithmic scale, also - see the work of Andrés Gómez Emilsson: https://qri.org/blog/log-scales
Random sampling via cell phone messages, called ecological momentary assessment, can be used to more accurately understand pain temporal dynamics, and having patients draw pain diagrams can give a much more detailed understanding of pain location and type, aiding diagnosis.
Thank you for sharing, and for working on subtyping.
A lot of your experience sounds familiar to me (ME/CFS). Invisible disability, people never see the bad days, the doubting and downplaying. People get very weird around disability that doesn't fit their preconceptions. I like the term "dynamic disability".
Anyway, I subscribed, and good luck!
Great article! Strange question but I really like the art in the beginning of the article and was wondering if you could point me to a source?